@article {4756, title = {Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda}, journal = {PLoS One}, volume = {11}, number = {6}, year = {2016}, note = {Betancourt, Theresa
Smith Fawzi, Mary C
Stevenson, Anne
Kanyanganzi, Fredrick
Kirk, Catherine
Ng, Lauren
Mushashi, Christina
Bizimana, Justin I
Beardslee, William
Raviola, Giuseppe
Smith, Stephanie
Kayiteshonga, Yvonne
Binagwaho, Agnes
eng
R34 MH084679/MH/NIMH NIH HHS/
T32 MH093310/MH/NIMH NIH HHS/
2016/06/29 06:00
PLoS One. 2016 Jun 28;11(6):e0157042. doi: 10.1371/journal.pone.0157042. eCollection 2016.}, pages = {e0157042}, abstract = {A "risk of harm" protocol to identify youth in need of immediate emergency assistance in a study on mental health and HIV in Rwanda among 680 youth ages 10-17 is described. Cases are presented that describe the experience in using this protocol to ensure safety of participants, with ethical and logistical challenges considered. Among the population of the study, 3.2\% were deemed "risk of harm." The most prevalent presenting problem was non-fatal suicidal behavior (91\% of risk of harm cases), with 36\% having a history of a reported previous attempt. Challenges included: acute food insecurity/significant poverty; lack of support/adequate supervision from family members; family violence; alcohol abuse; and HIV-related stigma. Development of a "risk of harm" protocol and collaboration between study staff, community leadership, health authorities, and health workers are critical to ensuring participants{\textquoteright} safety in research among vulnerable populations.}, keywords = {*Vulnerable Populations, Acquired Immunodeficiency Syndrome/diagnosis/*epidemiology, Adolescent, Child, Community-Based Participatory Research/*ethics/methods, Female, Humans, Male, Mental Health/statistics \& numerical data, Rwanda, Socioeconomic Factors, Suicide/statistics \& numerical data}, isbn = {1932-6203 (Electronic)
1932-6203 (Linking)}, author = {Betancourt, T. S. and Smith Fawzi, M. C. and Stevenson, A. and Kanyanganzi, F. and Kirk, C. and Ng, L. and Mushashi, C. and Bizimana, J. I. and Beardslee, W. and Raviola, G. and Smith, S. and Kayiteshonga, Y. and Binagwaho, A.} }